About me (gedney1980)

gedney1980 · by gedney1980 on Wed Apr 16, 2008 3:24 am

I wanted to let you all know about me, so that if you see me not post for a long time you'll kinda know why. You see I'm serverly disabled. I was born with Scoliosis and Neurofibromatosis (www.nf.org ). My condition is very servere, I've been told that I may be the worst case in NY, possible the whole US. I have had 14 operations on my back between the ages of 3 and 16. My first surgery at age 3 was major, I was on my back in the ICU for 7 weeks, not able to move. On top of everythng, My lungs are extremly weak. I'm on oxtgen 24/7 and on another machine to help me breath, which I HAVE TO wear when I sleep because my breath become TOO shallow. Plus, all my life my left leg was servrely curved inward. Just recently(March 2nd 2007 to be exact) I had my left leg amputated above the knee. A month after that operation I ended up back in the ER. My stomach swelled three times it's size. I don't really remember too much because they drugged me up. I was told I had an intestinal blockage. So I had another operation. They had to remove part of my intestine. The incision is accross my whole stomach, from my right side to my left side. Because they had to cut into all the stomach mucsles I could not barely move after the surgery. I couldn't even roll over. I have gotten a bit stronger. But ....... I'm bed ridden. I'm unable to get out of bed. I don't know when I will be able to get out of bed. So if I disapear for a few days, it's because I'm not feeling well and need to rest. Or I have been admitted to the hospital for a few days.

Webkinz are really a blessing for me. It gives me something to do. They bring me alot of joy. It's so much fun and they are all so cute. And I'm so happy to chat with others who love these little guys as much as I do.

Charlene and Che-ko